Scopus İndeksli Yayınlar Koleksiyonu
Permanent URI for this collectionhttps://hdl.handle.net/20.500.14627/7
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Article Multipl Skleroz Öz Yönetim Ölçeğinin Türk Toplumuna Uyarlanması: Geçerlik ve Güvenirlik Çalışması(Dokuz Eylul University, 2025) Tosun, Anil; Eroglu, NermınGiriş: Multipl Skleroz (MS), fiziksel ve psikolojik hasara neden olan ve oldukça değişken prognoza sahip kronik, otoimmün bir hastalıktır. Bireylerin fiziksel olarak bağımlı hale gelmesine neden olan semptom tedavisi dışında öz bakım becerilerinin geliştirilmesi oldukça önemlidir. Amaç: Araştırma Multipl Skleroz Öz Yönetim Ölçeği (MS-ÖYÖ) Türk toplumuna uyarlanması amacıyla metodolojik olarak planlandı ve uygulandı. Yöntemler: Araştırma, Temmuz 2019-Mayıs 2020 tarihleri arasında bir üniversite hastanesinin nöroloji kliniğine başvuran multipl sklerozlu bireylerle gerçekleştirilmiştir. MSSM-R’nin geçerlik ve güvenirliği 169 katılımcı ile test edilmiştir. Yapı geçerliliği doğrulayıcı faktör analizi (AMOS) ile incelenmiş, test–tekrar test güvenilirliği eşleştirilmiş örneklem t-testleri ve Pearson korelasyon analizi ile değerlendirilmiş ve iç tutarlılık Cronbach’s alpha ile belirlenmiştir. Ayrıca madde analizleri de yapılmıştır. Bulgular: MS-ÖYÖ geçerliği dil geçerliği, yapı geçerliği (DFA) ve kapsam geçerliği ile değerlendirilmiştir. Güvenirliğinde iç tutarlılık analizi (Cronbach’s Alpha) .88 oldukça yüksek bulunmuştur, madde toplam korelasyonu incelenmiş ve herhangi bir maddenin ölçekten çıkarılmamasına karar verilmiştir ve zamana karşı değişmezliğin değerlendirilmesi için test tekrar test güvenilirliği için 30 hastaya iki hafta ara ile ölçek tekrar uygulanmıştır. Sonuç: Multipl Sklerozlu bireylerin öz yönetimlerinin değerlendirmesi amacıyla Türk toplumuna uyarlanan MS-ÖYÖ geçerli ve güvenilir bir araçtır.”Türkçeye uyarlanan MSSM-R, geçerli ve güvenilir bir araç olup, multipl sklerozlu bireylerin öz-yönetim müdahalelerini desteklemek için hem klinik uygulamada hem de araştırmalarda kullanılabilir.Article Investigating Compliance With a Home Exercise Program in People With Multiple Sclerosis(AVES, 2025) Tekeoğlu Tosun, A.; Yilmaz, N.; Eryildiz, E.; Işiklar, Ç.; Hotaman Kekli̇Cek, H.Objective: This study aims to evaluate the status of receiving home exercise programs and adherence among individuals with multiple sclerosis (MS), providing insights for clinical practice. Methods: Individuals diagnosed with MS, aged 18 and over, literate, and reached through the social media platforms of the MS Society of Türkiye, were included in the study. Individuals who did not fully complete the questions asked and/ or gave answers irrelevant to the topic, who reported comorbidities that may prevent participation in exercise along with MS, and those not meeting the specified age criteria were excluded from the study. Data were collected through an online questionnaire assessing MS patients’ sociodemographic and clinical characteristics and their engagement and adherence to home exercise programs. Results: A total of 217 people (n = 36) male, (n = 181) female, participated in the study. While the rate of having a prescribed home exercise program among all participants was 12.90%, this rate was 8.33% for men and 13.81% for women. When the compliance of the participants with home exercise programs was examined, all men stated they sometimes applied these programs. This rate was found to be 52% for women. Conclusion: The study demonstrated that a considerable proportion of individuals with MS did not engage with the prescribed home exercise programme. Furthermore, the adherence rates and frequency of exercise updates were found to be inadequate. Since the MS population is increasing steadily in Türkiye, it is vital to facilitate access to effective exercises for people with MS and to ensure lifelong compliance with these exercises. © 2025 AVES. All rights reserved.Article Citation - Scopus: 3Universal Design Approach To Analysis of Physical Environment for Users With Multiple Sclerosis(Universitat Politecnica de Catalunya, 2022) Çakır, H.S.; Tosun, A.The concept of Universal Design aims for the utilization of every product and environment for every individual without the need for further adaptation. The frequent occurrence of Multiple Sclerosis (MS) in societies has necessitated a more innovative and exploratory approach to the field of design. Many of the products and built environments encountered by individuals with MS in their daily lives fall short in terms of meeting safety and accessibility needs. It is essential to establish the correct design approach so that users with MS can meet their needs easily and safely without depending on others. In this research, the problems encountered by users with MS in their residences were evaluated within the framework of Universal Design principles, and design recommendations were stated using a sample case in Turkey. Throughout the study, accessibility challenges, mobility, fatigue and balance problems, vision and lighting conditions, climatization and noise sensitivity, and psychological issues were primarily considered. The residence of the sample user with MS was examined in detail, and an in-depth interview was conducted during the research. The difficulties and life routines of the user with MS were observed and identified. Home design solutions associated with Universal Design principles were represented so that the users with MS have safe and accessible housing regarding their physiological and psychological conditions. The highlighted proposals may contribute to architectural design to make modifications for comfortable and safe housing in related cases having similar symptoms with MS. Future research can benefit from these findings and proposals to provide innovative approaches, develop policies, and conduct interdisciplinary studies on related design issues. © 2022, Universitat Politecnica de Catalunya. All rights reserved.